Friday, Aug. 27, 2010
By Frankie O
In life, like sports, some very unexpected things can happen. One such thing for me was when my son was born seven years ago. Any child will change the path of your life, with Ben it was even more so. Ben was born with an ichthyosis. Whats an ichthyosis? How much time do you have? An ichthyosis is part of a family of genetic skin disorders characterized by dry, thickened, scaling skin.
There over twenty types that differ by their underlying genetic cause, outward appearance andor mode of inheritance. They are as common as occurring during 1 in 250 births, to happening in 1 in 100,000. Epidermolytic Hyperkeratosis (EHK) is what my son has and is one of the more rare ones. Why am I telling you about this? Well when a disease or disorder is very rare in occurrence, there tends not to be enough money or resources available to combat it. For me and my family, and many more in our situation, our savior has been the Foundation for Ichthyosis & Related Skin Types: F.I.R.S.T. This organization provides medical services, research, social networking and HOPE for those affected by these diseases. I cant stress how much this organization has meant to me and my family. Again, how does this affect you? Well, theres a way you can help and maybe have the time of your life too.
Frankie O presents:
THE 1 in a 100 CHANCE for a ONCE in a LIFETIME EXPERIENCE!!
If youre a fan of Notre Dame football, (and honestly, who isnt? Did I say honestly or ironically? Enough about my rooting interests later!) this is your ultimate dream package!
For the Notre Dame vs. Michigan football game on September 11th at 3:30 PM (game 2 of the Kelly era!!)
I have a package that includes:
4 game tickets
A certificate for 4 pre-game sideline passes
A certificate for a Tour for 4 of the Football Stadium Locker Room
A certificate for a football personalized and autographed by ND Head Coach Brian Kelly
How do you win? I will be conducting a raffle with 100 tickets. Thats it 100! When have you been in a raffle with that kind of package with those good of odds? Tickets are only 50.00!
Tickets will be sold, by me, on a first come first served basis. Also, you can buy as many as you would like. I will arrive an hour before my shifts (I will also sell them at any other time, just e-mail me for details) in the next two weeks to sell them until they are gone.
The raffle winner will be announced on my Twitter account (@realfrankieo) on Wednesday, September 8th. I will contact the winner directly by e-mail at that time. We together will make all the necessary arrangements on Thursday the 9th to ensure a fantastic time at the game and in South Bend.
At any time you can e-mail me with any questions at: Frankieo@harrycarays.com.
My shifts at the bar will be: Sat 828 4-cl, Sun 829 4-cl, Tues. 831 4-cl, Wed 91 4-cl, Friday 93 10-6, Sat 94 4-cl, Tues 97 4-cl and Wed 98 4-cl.
Come in and say hello, and buy some tickets!